Improving quality of life for those living with bleeding disorders

family fest

A weekend getaway for the family filled with educational and fun events!

Count on experiencing a great weekend filled with learning, fun and connection with other families who live with bleeding disorders. Education components will include topics that will be inspiring, informative and interactive.

Cost to SWOHF community members: $15 per person / maximum of $75 per family  

**Need-based scholarships are available -- please contact SWOHF Office at 937-298-8000

Where: Higher Ground Conference & Retreat Center  

When: Friday June 22 to Sunday June 24; Registration and Check-in begins at 3:00 p.m. Dinner is at 6:30 with program following. Checkout is 10:00 a.m. Sunday.

Your Registration includes:

  • Two nights accommodations at the retreat center (private hotel/lodge room and bathroom)
  • Meals provided: Friday dinner, Saturday breakfast/lunch/dinner, Sunday breakfast
  • Education sessions
  • T-shirt and goodie bag
  • Vendor exhibits
  • Childcare during programs

Dress is casual. Be sure to bring your swimsuit, socks and bug spray. Bring your own treatment product and supplies; Cincinnati Children's Hospital is a 30-minute drive if needed.

Education Sessions include:

"A Courageous Hope"  Guy Gruters Captain, United States Air Force; POW in North Vietnam; Captain, Eastern Airlines

Guy flew more than 400 combat missions, shot down twice and spent more than five years as a POW. He has been awarded more than 30 combat medals, including two Silver Stars, two Purple Hearts, two Distinguished Flying Cross awards. His unforgettable story is an inspiring example of heroic leadership as he is one of those rare individuals who combine feelings of intense patriotism and love of the United States of America with an even deeper faith and love of God. During this session, he will share with us the importance of perspective and perseverance in dealing with life's challenges.


"The Science of Hemophilia - A Changing Landscape" -- Diana Caito, BSN, RN - Clinical Educator, Genentech

This interactive workshop takes a closer look at:

  • The coagulation cascade (how the body forms blood clots)
  • What happens in people with hemophilia A and people with inhibitors
  • How current factor replacement and bypass agents work
  • Emerging scientific approaches

The program features a short video of an animated coagulation cascade, as well as interactive activities to engage participants and help them learn firsthand. This workshop is sponsored by Genentech. ©2017 Genentech USA, Inc. All rights reserved.


"Telling Your Story" -- Dana Norris, Founder/Host/Producer: Story Club Cleveland

Everyone has a story to tell whether you're involved in advocacy at a state or national levelor giving someone a glimpse into your life with a bleeding disorder.   It is important to be able to tell your story to increase awareness of bleeding disorders. This program will highlight the important elements of a compelling story and will give attendees practical skills to tell their own story in words that will make an impact.

Women's Session: "Artistically Speaking" -- Kate Nammacher, Director of Education, National Hemophilia Foundation

Art can help encourage the self-expression of thoughts and feelings related to personally living with a bleeding disorder or caring for someone who does. This workshop uses experiential art techniques to help participants recognize the impact of stress on their health and provide a process through which they can share with each other.


Saturday Morning Special Program for Children: Art Workshop for Kids -- Kate Nammacher, Director of Education, National Hemophilia Foundation

Saturday Evening Family "Bond-fire"

Campground Info:

  • No pets or alcoholic beverages.
  • No smoking inside any building or anywhere on campground except designated smoking areas.
  • No candles or burning incense in buildings.
  • Campground quiet time: 12:00 midnight to 6:00 a.m.
  • Bed linens and bath towels are provided. Bring your own beach towel for pool.
  • Please abide by posted speed limit of 15 mph. Do not drive or park on any grassy area.