Improving quality of life for those living with bleeding disorders
A weekend getaway for the family filled with educational and fun events!
Count on experiencing a great weekend filled with learning, fun and connection with other families who live with bleeding disorders. Education components will include topics that will be inspiring, informative and interactive.
Cost to SWOHF community members: $15 per person / maximum of $75 per family
**Need-based scholarships are available -- please contact SWOHF Office at 937-298-8000
Where: Higher Ground Conference & Retreat Center
When: Friday June 22 to Sunday June 24; Registration and Check-in begins at 3:00 p.m. Dinner is at 6:30 with program following. Checkout is 10:00 a.m. Sunday.
Your Registration includes:
Dress is casual. Be sure to bring your swimsuit, socks and bug spray. Bring your own treatment product and supplies; Cincinnati Children's Hospital is a 30-minute drive if needed.
Education Sessions include:
"A Courageous Hope" Guy Gruters Captain, United States Air Force; POW in North Vietnam; Captain, Eastern Airlines
Guy flew more than 400 combat missions, shot down twice and spent more than five years as a POW. He has been awarded more than 30 combat medals, including two Silver Stars, two Purple Hearts, two Distinguished Flying Cross awards. His unforgettable story is an inspiring example of heroic leadership as he is one of those rare individuals who combine feelings of intense patriotism and love of the United States of America with an even deeper faith and love of God. During this session, he will share with us the importance of perspective and perseverance in dealing with life's challenges.
"The Science of Hemophilia - A Changing Landscape" -- Diana Caito, BSN, RN - Clinical Educator, Genentech
This interactive workshop takes a closer look at:
The program features a short video of an animated coagulation cascade, as well as interactive activities to engage participants and help them learn firsthand. This workshop is sponsored by Genentech. ©2017 Genentech USA, Inc. All rights reserved.
"Telling Your Story" -- Dana Norris, Founder/Host/Producer: Story Club Cleveland
Everyone has a story to tell whether you're involved in advocacy at a state or national levelor giving someone a glimpse into your life with a bleeding disorder. It is important to be able to tell your story to increase awareness of bleeding disorders. This program will highlight the important elements of a compelling story and will give attendees practical skills to tell their own story in words that will make an impact.
Women's Session: "Artistically Speaking" -- Kate Nammacher, Director of Education, National Hemophilia Foundation
Art can help encourage the self-expression of thoughts and feelings related to personally living with a bleeding disorder or caring for someone who does. This workshop uses experiential art techniques to help participants recognize the impact of stress on their health and provide a process through which they can share with each other.
Saturday Morning Special Program for Children: Art Workshop for Kids -- Kate Nammacher, Director of Education, National Hemophilia Foundation
Saturday Evening Family "Bond-fire"